Sunday, May 8, 2016

2.5 Hours in the Life of Someone With Chronic Fatigue


8:50am: Fiance wakes me up to give me a kiss before he goes to work.

10:30am: Alarm goes off. I am too tired, and need more sleep, so I silence it. I've been sleeping for so long that the humidifier on my CPAP has run out of water, drying out my nasal passages, but I'm too tired to get up and get more water, so I deal with it.

Sometime in between 10:30 and Noon: I am still asleep, and I have a dream about going on a high school band trip to Indiana.

Noon. I wake up. Too tired to get out of bed, so I check Facebook.

12:15: Saw someone in my business group was trying to get a hold of me. Feel guilty because my brain is too tired to respond, and can't really focus enough to have a proper conversation, even on Facebook Messenger.

12:30. Move to couch. Finish a show on Netflix.

1:30: Still too tired to move, but desperately need coffee. We don't have any coffee. I'm wearing a cute outfit, but it's yesterday's outfit (was too tired to change into pajamas) but it's too cold to wear it outside, so I get up the strength to change my clothes. Sometimes I wear these really cute heels that I got, but today I am too tired to even balance, so I wear vans.

1:35: Look in mirror. CPAP has caused lines on my face. (That's what wearing a CPAP for twelve hours straight will do.) Put on moisturizer.

1:45: Walk up hill. It feels like I am hauling up about ten cinder blocks with me, but really I am just holding two books and a small backpack. I was going to go to a different store to buy coffee to avoid going uphill, but needed to return library books, so I had to walk up the hill and decided to go to the cheaper store while I was there.

2pm: See a friend. She tells me to stop by where she is working. I am too tired.

2:30: Come home. Look at Facebook, Finally get up the strength to go into the office to work. Actually, just kidding - I only went to the office because the wifi on my phone was acting weird. No attention span for work.

2:33pm: Consider going back to sleep. Tired.

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